La Jolla doctor donates late father’s tissue to help Lyme disease research
by VICTORIA DAVIS
Published - 01/31/19 - 10:05 AM | 11048 views | 18 18 comments | 32 32 recommendations | email to a friend | print
Dr. Sharon Wampler with her late father Whitfield (W.E.) Wampler.
Dr. Sharon Wampler with her late father Whitfield (W.E.) Wampler.
slideshow
Before now, La Jolla biochemist Dr. Sharon Wampler never spoke publicly about the controversy that plagued her father’s battle with Lyme Disease. Sharon’s father, Whitfield (W.E.) Wampler, was age 92 when he passed away August of 2016. While it’s unknown exactly how long W.E. lived with Lyme, his more severe symptoms—including joint failure and loss of hearing and eyesight—spanned over ten years.

“I remember him looking at me while in the hospital and saying, ‘I don’t understand. Why can’t the doctors help me?’” said Sharon, who has worked many years in the Biotechnology industry and who also lives with Lyme. “I had to explain to him that there’s not a drug that they can just say, ‘Here, take this and you’re fixed.’ There’s so much more to it.”

The controversy, which has shadowed W.E. and other patients, like Sharon, with Lyme Disease rests largely in the fact that the Lyme diagnostic tests are, according to Bay Area Lyme (BAL) Foundation’s Executive Director Linda Giampa, “only 50 percent accurate.” As stated by the BAL, located in Portola Valley, Lyme disease is one of the “most common vector-borne infectious diseases” in the world and is found in 49 of the 50 United States (Hawaii being the exception). There are over 329,000 new cases of Lyme occurring in the country each year.

“Lyme is very difficult to diagnose,” said Giampa. “The disease is only running around in the blood for a short period of time, and then it goes and hides in the organs and joints.”

“It’s ‘The Great Imitator’” she added. “ALS, MS and Fibromyalgia are the most common misdiagnosis for people who actually have Lyme.”

Currently, the only test available for Lyme Disease is a blood diagnostic, which does not register the Lyme bacteria (Borrelia Burgdorferi) that has already made it into the body’s tissue. Giampa and Sharon say this is why many people develop Chronic Lyme Disease and are sent home with “insufficient medication” and no knowledge of their true condition.

However, Giampa believes BAL will have a more accurate diagnostic test on the market in five years, thanks to the recent tissue donations. In collaboration with National Disease Research Interchange (NDRI) and Columbia University, BAL launched the very first Lyme Disease tissue bank in the US this past November. Sharon’s father was a pilot donor, submitting tissue from his brain, spinal cord, heart, sciatic nerve, skeletal muscle, synovial membrane and eyes.

“I know people who have killed themselves from the physical pain that comes from living with Lyme,” said Sharon. “I’ve had friends call me who are bed-ridden from this asking for help and there’s a lot of emotions that come with that. But that’s why these tissue samples are so important. I really think this research could be the thing that saves them.”

In 2008 Sharon (age 41 at the time) contracted Lyme after being bitten by a tick during a trip in Heidelberg Germany. She never contracted the infamous “bullseye rash” so Sharon tossed the tick and forgot about it. A month later Sharon started getting headaches and sporadic joint pains. Doctors in San Diego tested her for lupus and arthritis, but the results showed no indication that there was anything wrong. Over the next six months, Sharon’s conditioned worsened as she was passed from doctor to doctor.

“My whole body hurt and my heart rate would go up,” said Sharon. “I just couldn’t figure out what was wrong. I was in the best shape of my life.”

Sharon was eventually tested for Lyme Disease, and while the test came back positive, doctors said her results were “inconclusive.” The test to see if the bacteria-fighting antibodies (Immunoglobulin G and Immunoglobulin M) were active came back both positive and negative. Sharon’s doctors dismissed the test and Sharon continued to get worse for another year.

“Doctors generally don’t understand the nuances of diagnostic tests,” said Sharon. “They just know positive or negative, so they didn’t believe my test results and the doctor told me it was a false positive,” said Sharon. “He told me, ‘You don’t have Lyme Disease.’”

“We learned about Lyme Disease for maybe five minutes in medical school,” added Sunjya Schweig, who serves on BAL’s scientific advisory board. Schweig went to UC Berkley for undergrad, UC Irvine for medical school and did family practice residency at UCSF in Santa Rosa. He has been working in the field of Lyme disease for 12 years.

“I looked back at some of my medical school textbooks and there were two or three paragraphs on one column, on one page, about Lyme Disease and that was it. It was all very surface level education too about the bullseye rash. Not much more than that.”

Eventually, Sharon was re-diagnosed by a rheumatologist and formed her own team of health care professionals to help her recover, including Michael Kurisu D.O. the Director of UCSD Center for Integrative Medicine who has been treating Sharon for the past nine years. Recognizing there was a problem with the diagnostic system, Sharon fought tooth and nail when her father also started getting tested for Lyme.

Unfortunately, W.E. was not officially diagnosed until 2015. By 2016, Sharon had to move her father into assisted living as his condition continued to grow significantly worse. But he was declined and spent seven weeks in the hospital.

“I was appalled as a scientist and as a patient how we were disregarded by many in the healthcare system,” said Sharon. “I’ve definitely had to get over a lot of anger.”

BAL was the first research facility to donate all their resources to researching Lyme Disease. Now their new tissue bank has been working hard to bring both physical and emotional healing to patients like Sharon and her father. BAL has raised over $22 million to fund Lyme research and Giampa says much credit is owed to Sharon, her father and the other 35 individuals who have made inquiries for donation.

“These things are heartbreaking, and we do get emotionally tied to the family and their story,” said Giampa, who is also working to develop a novel therapeutic for those already diagnosed with chronic Lyme. “We just had a mother come in to donate the body of her young daughter and that was the hardest of all. But these families want to help. They want to know the death was not in vain.”

Giampa says the biobank has been “tremendously successful” in that researchers who had never invested their time in studying Lyme before are now have the samples and the motivation they need. This past May BAL knew four people personally who passed away from Lyme Disease and there was a memorial held at the facility.

“It’s not discussed nearly enough and, hopefully, we’ve been a big push in that,” said Giampa. “Knowing that we’re all doing something to forward that research, that’s what keeps us going. Things are going to change.”

Sharon has been working with Congressman Scott Peters staff since 2017 to bring Lyme awareness to the San Diego community, having her first meeting in August 2018 with staff of Assemblyman Todd Gloria. Sharon is also part of the patient cohort for "Project Apollo," a personalized medicine effort founded by Dr. Mike Kurisu and based out of UCSD. She’s the Lyme patient.

“A lot of the medical community has not caught up,” said Sharon. “But the scientific and research community is much more open to realizing that we don’t know everything about this disease.”

The Bay Area Lyme will be hosting a Lyme fundraiser in La Jolla with SoulCyle March 1. The fundraiser “Ride Out California” is open to the public and is a Spin Class held to raised funds for Lyme Disease Research.
Comments
(18)
Comments-icon Post a Comment
monika love
|
August 12, 2019
I has suffered for Human papillomavirus HPV) for 2years, I was given some tablets at the hospital but I refused to take it, They said I have to be on it for life so I don't want take a drugs everyday for life. No point in taking medicine everyday when u won't get cure from it and I was advice to seek for natural herbal cure, after some time I found dr onokun is the most trustful herbalist that have herbs to cure wicked symptom's,I emailed dr onokun, for 2weeks been his patient he cured my (HPV) with his herbal. I only used his natural herbs for two weeks it was 100% cure. I'm not (HPV) patient anymore. I'm happy about it i finally got cured out of this mess been in my body for 2years. I also recommend you if you're living with (HPV) or herpes symptoms i also want you to be free contact dr onokun with the email attach to my post. Dronokunherbalcure@gmail.com
peggyR nixon
|
August 10, 2019
My Wife was diagnosed with ALS (Lou Gehrig’s Disease) when she was 72 years old 4 years ago. The Rilutek (riluzole) did very little to help her. The medical team did even less. Her decline was rapid and devastating. Her arms weakened first, then her hands and legs. Last year, a family friend told us about Doctor Hazim Usman and this successful ALS TREATMENT, we contact him through his email address (usmandrhazim@gmail.com) and ordered this ALS Formula, i am happy to report the treatment effectively treated and reversed her Amyotrophic Lateral Sclerosis (ALS), most of the symptoms stopped, she is able to walk and eat well, sleep well and exercise regularly., she is pretty active now and her attitude is extremely positive.
wendy bella
|
August 07, 2019
My wife and i have been infected with human papillomanvirus, although i was the coursed because i cheated on my wife it was when i contracted the virus for the pasted 3 years. and this has been a deeply situation so embarrassed every-time i looked at my self i just pissed off because the virus was getting over my life. just to make the story short, few weeks ago i founded a herbalist Dr. online who has cured thousand of hpv patients with 100% excellent result and i inquire the treatment me and my wife taking it for two weeks and we got cured i just want to use this medium to thanks Dr Abaka for his wonderful treatment he so-much saved us form this virus. his information been attached to my post you can reach out to him via: drabakaspelltemple@gmail.com

whatsapp num 2349063230051.
Gloria Evans
|
July 25, 2019
Good day everybody, my name is Cindy. How can i explain this to the world again that there is a man who can cure heart cancer and HIV with his powerful spell, I was attache with heart cancer over 2 year I have being into cancer drug I can’t anymore. I decide to look for help then I found a woman post write about this great spell caster man LORD Dr Afrid telling people about how this man have cured her HIV I don’t believe that, because all I have in mind is that heart cancer had no cure, thank God for my life today am heart cancer negative through the power of Dr Afrid I contacted this man for help because who write about him drop an email of the man I pick the email and emailed him for the cure this man told me what to do about the cure well, am from U S A this man prepared a curing heart cancer herbal medicine for me and delivered it to me through DHL he told me that i am going to be cure of it after taking the herbal medicine for six days before i can be able to get rid of it. so i did as he says to me and i was always taking it everyday of it, so at the last day of it he called me and told me once i am done taking it i should go for a check up immediately, and before then i was even feeling stronger and better, so immediately i was done in that very day then i quickly go for a check up and the doctor confirmed it that i am cure of my heart cancer, it was just like a dream to me because i never new there could be this great spell caster that can get me rid of this my situation to a better life again, so friends sisters brothers relative if you need his cured just Email him now (drafridbalhealhome@gmail.com) thank you once again the great for what you Dr Afrid have done for me, if you are out there, passing through any of this problems listed below:

(1) If you want your ex girl friend or boy friend back.

(2) if you always have bad dreams.

(3) You want to be promoted in your office.

(4) You want women/men to run after you.

(5) If you want a child.

(6) You want to be rich.

(7) You want to tie your husband/wife to be yours forever.

(8) If you need financial assistance.

(9) Herbal care.

(10) if you want to cure your HIV cancer helpers sypilise and all you can as well contact him now with this Email address (drafridbalhealhome@gmail.com).

whatsapp contact 2349057260738

loveth andre
|
July 14, 2019
Greetings

My name is loveth andre.

Are you suffering from #_herpes Contact a herbal doctor for cure he has herbal remedies and cure for your problems visit his email on doctorluckyherbalhome@gmail. com or doctorobaspellcenter@gmail.com or

Whatsapp contact : 393510598611

I was help by him when I had similar problem.

He also have a herbal cure for the Following DISEASES,this is Real

Herpes, Cancer, Als,Hepatitis, Diabetes, HPV,Infections,HIGH BLOOD PRESSURE ETC.
Luka Kegley
|
June 27, 2019
4 years ago I learnt about ALS/MND successful chinese medicine from Rich Herbs Foundation (ww w. richherbsfoundation.c om), the treatment made a tremendous difference for me. Few weeks into the treatment I had improved muscle strength and coordination, improved speech, improved walking balance, increased appetite, improved eyesight and improved mood swings. 4 years since the treatment, i still feel stronger than ever with no symptoms at all, only occasional tingling on my right foot at night. I feel cured from the disease! 

Owen Susan
|
May 23, 2019
Natural Herbs have cured so many sickness and diseases that drugs and injection cant cure. I've seen the great importance of natural herbs and the wonderful work they have done in people's lives. i read people's testimonies online on how they were cured of Herpes,Stroke,Hiv,Fibromyalgia, Diabetics,Cancer,Lyme Disease etc by Dr. Ameola herbal medicine, so i decided to contact the doctor because i know nature has the power to heal anything. I was diagnosed with Herpes for the past 8 years but Dr. Ameola cured me with his herbs and i referred my aunt and her husband to him immediately because they were both suffering from Hiv and they were cured too. I know is hard to believe, but am a living testimony. There is no harm trying herbs. He is also a spell caster, he cast spells to restore broken marriages and a good luck spells to prosper and excel in life. You can Contact him on ( ameolaherbalhome@gmail.com ) or WhatsApp him via 14158551136
Martina Jolicoeur
|
May 14, 2019
I was diagnosed in July 2012. I did not have any rash that I know of. I was bit by a tick when I was on vacation in Gettysburg, PA. I became very lethargic and my joints, especially my neck was hurting, some flu-like symptoms. My doctor checked EBV, Mono and Lymes. Lymes was positive. Tried 21-days of Doxy. Felt a little better, but then the bottom dropped out. Retested by PCR and positive. I was on 30-days of IV Rocephin. I felt better, but still had bad days, so I decided to start on a Natural Lyme Formula treatment protocol from Organic Herbal Clinic (ww w. organicherbalclinic. com), the treatment effectively treated my Lyme disease condition. The stiffness, fatigue and joint/muscle/body pains has subsided, I feel better overall than i have felt in years. 3 months after the treatment, I made an appointment with a rheumatologist in Houston, after examining me, she looked at me and told me I did not have Lyme disease because all the usual Lyme symptoms had stopped. Its almost like a miracle!
Jane232
|
April 09, 2019
My Dad has finally cured after 5 years of diagnosed with ALS. I just want to thanks this grate herbal Dr. i met online. I'm so excited to see my Dad healthy, walking with his two legs he can even exercise his body This is the miracle i have been praying and God has finally sent Dr. Agumba to healed my Dad out from ALS. I just want to thank him and also let the world know there is a grate herbal Dr. who easily eliminate ALS in two weeks with herbal treatment. Here is online information to connect with Dr. Agumba. email address: dragumbasolutioncenter@gmail.com whatsapp number 2349032173881.
felix Greg
|
March 12, 2019
its not new about Amyotrophic lateral sclerosis ALS disease, the issue is we fail to secure for a cure to this horrible disease. i was diagnosed with ALS disease in 2O14. Of all the horibble experience I went to too many hospital for solution but all they could give was Riluzole (Rilutek) which i took but to no avail. i was worried because i knew i was going to die. this virus is not gotten through sexual intercourse, my believe was that i was aflicted. for this reason, i took time to research on a natural means to cure my ALS disease since there was no cure for it by the scientist. During this period of experience, i came accross an online forum were someone made a comment on a page concerning Amyotrophic lateral sclerosis {ALS} about a herbal medicine doctor named Dr JUDE from USA who cured her from ALS disease with his healing herbal medicine. at first i was curious but i concluded in giving him a trier. i quickly copied his email and whats-app number as i have no other choice because i was dying gradually. I contacted him via email instantly, he gave me his WEBSITE of which i visited. after going through it, i came back to him for my orders. He spoke to me on the phone and explained to me on how it works. I gave him my home adrress of which i received the Herbal medication through the ups company directly to my door step. to cut it short, i took it as it was prescribed to me by dr Jude. since then that i took his herbal medication till now, i haven't experienced any symptoms. its been 7 months now since i took it up till now i dont know the right words to appreciate him for curing my ALS disease with his healing herbs. i went back to my local hospital and they confirmed me cured from ALS. my local Doctor is still amazed by this great miracle. Health matters a lot in human. you can as well contact this great herbalist DR JUDE via email on [ Drjude752@gmail.com ] or reach him via WhatsAPP on { 1-86O-532-O721 ]. one thing i like must about dr Jude is honesty, everything he said was what happened. Contact him now and request for his website. thanks for taking time to read my testimony.
Clements Price
|
February 14, 2019


My Wife was diagnosed with ALS (Lou Gehrig's Disease) when she was 72 years old 4 years ago. The Rilutek (riluzole) did very little to help her. The medical team did even less. Her decline was rapid and devastating. Her arms weakened first, then her hands and legs. Last year, a family friend told us about Organic Herbal clinic and their successful ALS TREATMENT, we visited their website www. organicherbalclinic. com and ordered their ALS Formula, i am happy to report the treatment effectively treated and reversed her Amyotrophic Lateral Sclerosis (ALS), most of the symptoms stopped, she is able to walk and eat well, sleep well and exercise regularly., she is pretty active now and her attitude is extremely positive.
Clements Price
|
February 13, 2019
My Wife was diagnosed with ALS (Lou Gehrig's Disease) when she was 72 years old 4 years ago. The Rilutek (riluzole) did very little to help her. The medical team did even less. Her decline was rapid and devastating. Her arms weakened first, then her hands and legs. Last year, a family friend told us about Organic Herbal clinic and their successful ALS TREATMENT, we visited their website www. organicherbalclinic. com and ordered their ALS Formula, i am happy to report the treatment effectively treated and reversed her Amyotrophic Lateral Sclerosis (ALS), most of the symptoms stopped, she is able to walk and eat well, sleep well and exercise regularly., she is pretty active now and her attitude is extremely positive.
CHENGTT5
|
January 29, 2019
My ALS(Amyotrophic lateral sclerosis) Symptoms started out with a "foot drop" on my left foot. From there my left leg lost all muscle tone and the entire left leg muscles are gone. Also my fingers and thumbs "contract" at times. Left arm loses muscle tone too. My family doctor said there is no cure for ALS, I was just living unhappy life till I saw a blog talking about Best Health Herbal Centre. So many people said positive things about their herbal product which I don’t believe at first. I showed my daughter what I saw online about their product and my daughter decided we shall give it a try. Few days later she purchased two bottle of ALS herbal remedy which they said I will use for only six weeks. My life changed automatically after six weeks of applying the herbal remedy as instructed. All my symptoms was terminated completely and am now living ALS FREE .. For more details about their herbal product visit their Homepage ww w .besthealthherbalcentre. c om
Patrice Pousley
|
January 28, 2019
This is very exciting that BAL exists. I have chronic Lyme that I have battled for 5 yrs now. I know many others whose lives are a living hell. The fact that BAL exists is wonderful. I know I would want a donation to BAL. Just what I'm not exactly sure as I wouldn't want to go against anything in my religion. Thank you for all you do!
Sharon Wampler
|
February 14, 2019
Patrice - sorry to hear that you have struggled with Lyme for 5 years. I empathize as it certainly changed my life! BAL is doing amazing work to support patients. The first ever RideOutLyme California fundraiser and Lyme Awareness event will be held Friday March 1 at SoulCycke UTC in La Jolla. Perhaps you would want to participate? https://rideoutlyme.salsalabs.org/lajolla/index.html

I myself have not cycled in years but will do my best. The main purpose is to have community and a voice! The executive director from Bay Area Lyme will fly down. There is a discount code for those patients who cannot afford the registration fee. Feel free to contact me if you are interested. Hope you can participate and spread the word!

Regarding donation, happy to speak with you about any concerns with your religion. Stay well and thrive!

Sharon_wampler@yahoo.com
Luka Kegley
|
January 28, 2019
My first ALS symptom appeared in 2011. 4 years ago I learnt about ALS/MND successful chinese medicine from Rich Herbs Foundation (ww w. richherbsfoundation.c om), the treatment made a tremendous difference for me. Few weeks into the treatment I had improved muscle strength and coordination, improved speech, improved walking balance, increased appetite, improved eyesight and improved mood swings. 4 years since the treatment, i still feel stronger than ever with no symptoms at all, only occasional tingling on my right foot at night. I feel cured from the disease!
Luka Kegley
|
January 28, 2019
My first ALS symptom appeared in 2011. 4 years ago I learnt about ALS/MND successful chinese medicine from Rich Herbs Foundation (ww w. richherbsfoundation.c om), the treatment made a tremendous difference for me. Few weeks into the treatment I had improved muscle strength and coordination, improved speech, improved walking balance, increased appetite, improved eyesight and improved mood swings. 4 years since the treatment, i still feel stronger than ever with no symptoms at all, only occasional tingling on my right foot at night. I feel cured from the disease!
mary jane
|
June 27, 2019
Hello Everyone out there,I am here to give my testimony about a Herbalist doctor who helped me . I was infected with HERPES SIMPLEX VIRUS five years ago, i went to many hospitals for cure but there was no solution, so I was thinking how can I get a solution out so that my body can be okay. One day I was in the river side thinking where I can go to get solution. so a lady walked to me telling me why am I so sad and i open up all to her telling her my problem, she told me that she can help me out, she introduce me to a doctor who uses herbal medication to cure HERPES SIMPLEX VIRUS and gave me his email, so i mail him. He told me all the things I need to do and also give me instructions to take, which I followed properly. Before I knew what is happening after two weeks the HERPES SIMPLEX VIRUS that was in my body got vanished . so if you are also heart broken and also need a help, you can also email him at {drobaherbalhome2@gmail.com Contact him today on whatsapp number 2348111837606 and you will have a testimony... Beware of fake doctor using fake testimony Good luck!
Comments are back! Simply post the comment (it'll complain about you failing the human test) then simply click on the captcha and then click "Post Comment" again. Comments are also welcome on our Facebook page.
Trending